Alison Xamon MLC
MEMBER FOR THE EAST METROPOLITAN REGION
P.O. BOX 104, MAYLANDS, WESTERN AUSTRALIA 6931
PHONE (08) 9275 7474 – FAX (08) 9275 7574
MEMBER FOR THE EAST METROPOLITAN REGION
P.O. BOX 104, MAYLANDS, WESTERN AUSTRALIA 6931
PHONE (08) 9275 7474 – FAX (08) 9275 7574
Alison Xamon –
They will gather outside state Parliament at Midday in the faint hope that the Barnett Government will re-instate the full amount of compensation awarded to them, and ensure no more victims die waiting for the mostly inadequate funds
Only a few months ago a 50 year old woman eligible for Redress, but still waiting for its meagre justice, died
( click here for the ABC story of one victim who died just 2 months ago…still waiting )The money would have helped pay for her funeral, but even that late comfort was denied to her.The Greens MLC asks “How many more people will die waiting – waiting for the full amount of Redress funds to be re-instated – waiting again once money’s been allocated for it to actually be paid.”
Email from Ingrid Bentsen Background to the issue
The State Government is proposing budget to Mental Health of between 10-15%
Where people can find a petition to sign
Copy of petition attached, When completed, they need to be returned to PO box 3167 Carlisle South WA 6101on or before 12th October OR BRING THEM TO THE RALLY
3. And about the Parliament house action
ALL interested parties Consumers carers providers encouraged to attend the official hand over of the petition at
No permits for a march have been applied for however the gathering of a large number of people at Parliament house along with media coverage should send the message loud and clear.
The intention is to show the state government we are not invisible we will not be treated like the poor cousin regarding adequate funding and we will be a strong voice for those who have none!
The media will be there and some placards available hopefully making it easier to get our message out:
PETITION OPPOSING THE PROPOSED FUNDING CUTS TO MENTAL HEALTH SERVICES
TO THE HONOURABLE THE SPEAKER AND MEMBERS OF THE LEGISLATIVE ASSEMBLY OF THE PARLIAMENT OF WESTERN AUSTRALIA IN PARLIAMENT ASSEMBLED.
We, the undersigned, are concerned about the effect that any proposed funding cuts will have on consumers of the mental health services, their carers, families, members of the community, as well as the providers of mental health services in Western Australia
Of major concern are any cuts in relation to the much needed recovery programs, which are known to prevent re hospitalisation.
We are also concerned of the affect any proposed cuts would have on service providers, many of whom are already under funded and understaffed
We urge the State Government to oppose any such proposal and ensure that those involved in mental health will not have their health and lifestyles compromised
Secondly, we strongly urge the Legislative Assembly propose an increase in funding to raise staffing levels to a safe and effective standard
We now ask that the Legislative Assembly take every appropriate action to ensure the above.
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Please clearly mark envelope petition and return to Sound Psychiatric Information Network C/O
P/O Box 3167 Carlisle SOUTH WA 6101
Media Release Tuesday October 6th – Day 2 of Mental Health Week
Mental Health Week
Mental Health Week
Mental Health Week
Mental Health Week
Mental Health Week WEAK
” This is a travesty!!! We have for too long put up with this kind of cut backs and treatment of the mental health services while the community has no idea what is really happening.
Mental Health Week WEAK
Due to people with mental illness remaining the shameful silent voices. It is time we remain silent no more it is not only we who are experiencing these cutbacks but the whole community.
Mental Health Week WEAK
Staff also they have jobs and family to support also and love their jobs some whom have been in them many years and dedicated their lives to them.
There are many others our children services mental health services have had drastic cuts, and don’t believe that will not impact future generations it will.
Mental Health Week WEAK
We see this daily our children being exposed to troubled parents who are traumatised by serving overseas in wars created by Zealots who our governments think they can end century old persuasion.
Mental Health Week WEAK
This is but just one example of a government policy that ends up as a useless costly long term problem that Governments on both sides of politics have created.
Cheers Margaret Margaret Cook Mental Health Consumer Advocate/Educator
To Know The Road Ahead Ask Those Coming Back
COMIC WA Convenor Children of Mentally Ill Consumers “
Listen to some of the news grabs from Greens MLC Alison XAMON
Alison Xamon MH frontline services mp3
Alison Xamon MH reconsider mp3
Alison Xamon MH kicking the needymp3
Alison Xamon MH no fat to cutmp3












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| social policy | organisation development | membership | training | ||||||||||||||||||||||||||||||||||||
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[social service health community support training perth}
New commentary
29 July, 2009 | How many of the government’s health policies have been implemented? Angela Beaton and Lesley Russell look at the record
28 July, 2009 | Re-admissions to hospital are a costly failure in the hospital system, here and in the US, writes Lesley Russell
27 July, 2009 | The tragic Jakarta bombings should not distract our attention from the good news coming out of Indonesia, argues Hal Hill on our partner website, INSIDE STORY
Lynden Barber | Meanjin
30 July, 2009 | It sometimes appears that not only every major capital city, but every café at the end of every street of every godforsaken one-horse town has a film festival — or soon will have.
Rob Atkinson | Information Technology and Innovation Foundation
26 July, 2009 | This US report examines the issue of corporate tax reform and lays out six key principles for policymakers to consider as well as specific policy recommendations for crafting an innovation-based corporate tax code.
Andi Sebastian, Jacqueline Chant | Arts SA
23 July, 2009 | In late 2008, Arts SA funded a sector-wide consultation to determine the service needs of the disability and arts sector and to identify the most appropriate model for the delivery of these services
Steven Shavell | Berkman Center for Internet and Society
27 July, 2009 | The conventional rationale for copyright of written works, that copyright is needed to foster their creation, is seemingly of limited applicability to the academic domain.
Allison Miller | Knowledge Tree, Australian Flexible Learning Framework
30 July, 2009 | This article argues that as we move deeper into a digital age, e-portfolios will be a key method for demonstrating existing skills.
Panayiota Tsatsou | PLATFORM: Journal of Media and Communication
23 July, 2009 | This paper examines to what extent electronic media and communications have contributed to currently changing concepts of time and space and how crucial their role is in experiencing temporality, spatiality and mobility.
Australian Communications and Media Authority
23 July, 2009 | This report provides a comprehensive snapshot of young people’s use of electronic media from early childhood through to teenage years, and parents’ views about that media use.
OECD Directorate of Science, Technology and Industry | Organisation for Economic Co-operation and Development
30 July, 2009 | A sudden upturn in global sales of information and communications technology (ICT) goods in May and June suggests the ICT industry may have reached a turning point and be on the road to recovery, according to this OECD report.
Humphrey McQueen | Meanjin
30 July, 2009 | This articles argues that the privileging of access to data above its application means that the debate over whether libraries are in the book business or the information business is diverting us from the thought that they should be in the knowledge business
Jocelyn Pech, Lucy Nelms, Kelvin Yuen, Thomas Bolton | Australian Fair Pay Commission
24 July, 2009 | This report examines the structural and workforce profile of the Retail trade industry, an industry that employs a relatively large proportion of low-skilled and low-paid employees.
Dale Leorke, Saskia Sassen | PLATFORM: Journal of Media and Communication
23 July, 2009 | While globalisation has given rise to the global financial market, cross-border activities, digital networks with global span, and international organisations such as the UN and WTO that operate independent of nation-states, these remain materially embedded at the local, national level.
Jocelyn Pech, Anne McNevin, Lucy Nelms | Australian Fair Pay Commission
24 July, 2009 | Drawing on labour force data and previous research findings, this report charts recent trends in a number of indicators, including the population of young people not fully engaged in employment and/or education.
Dan Briody | Economist Intelligence Unit
23 July, 2009 | This report, based on interviews and a global survey of 170 senior executives, concludes that while firms recognise the importance of modernising IT systems, they do not always implement such projects effectively.
Anne Bayetto | Curriculum Leadership
25 July, 2009 | This article describes a program where postgraduate education students at Flinders University are helping to support young people who struggle with mathematics.
Jack Keating | Education Foundation, Foundation for Young Australians
27 July, 2009 | This report proposes a national reform agenda for Australian schooling.
Australian Bureau of Statistics
30 July, 2009 | Seven out of ten young children attended a preschool or a preschool program in 2008.
Jim Rose | Department for Children, Schools and Families
25 July, 2009 | This UK report focuses on the identification of dyslexia among students and the possible intervention approaches that can be made by teachers and parents.
Nina Markovic, Nick Fuller | Parliamentary Library
26 July, 2009 | This background note will be updated to include any new developments on the formal negotiations are taking place within the meetings and working groups that have been established under the United Nations Framework Convention on Climate Change and Kyoto Protocol framework.
Stephen Jones | Australian Review of Public Affairs
26 July, 2009 | While Australia’s federal and state leaders have been stuck discussing the introduction of the emissions trading scheme, some of our local governments have been trying to do something about the impact of human activity on global warming.
Jason Armfield | Australian Institute of Health and Welfare
24 July, 2009 | This report provides information on the oral health impacts experienced by Australian children during the period 2004-06.
Jeremy Sammut | Centre for Independent Studies
28 July, 2009 | The three-hundred page reform ‘blue print’ from the National Health and Hospital Reform Commission has endorsed a range of health reform measures that will not solve the hospital crisis in this country, argues Jeremy Sammut.
Robyn Gilbert, Anna Wilson | Indigenous justice clearinghouse
27 July, 2009 | This research brief draws on international research to identify current understandings of good practice in prisoner reentry generally as well as issues particular to Indigenous prisoner reentry.
National Indigenous Alcohol and Drug Committee | Australian National Council on Drugs
24 July, 2009 | This report argues that the strong links between substance misuse and Indigenous incarceration highlight an urgent need for government to address this disturbing problem.
Ron Huisken | Nautilus Institute
24 July, 2009 | This essay argues that the strikingly different dimension of Australia’s recent Defence White Paper, stems from a disjointed, inconclusive but unmistakably alarmist assessment of China’s potential impact on order and stability in East Asia.
Leanne Piggott | Australian Strategic Policy Institute
24 July, 2009 | This report explores the issue of energy security in the context of a growing dependence of the energy-hungry Asian economies on Middle Eastern supplies.
Fergus Hanson | Lowy Institute for International Policy
26 July, 2009 | This paper suggests that China’s Pacific aid-giving is unpredictable, secretive and is mired in a vicious cycle of short-termism that is a legacy of its long-running diplomatic battle with Taiwan.
Jeffrey Robertson | Parliamentary Library
26 July, 2009 | Since September 2008 North Korea has undertaken a series of measures to demonstrate the health of Kim Jong-Il, yet at the same time has demonstrated signs that succession plans may be underway.
Angela Evans | Lowy Institute for International Policy
27 July, 2009 | This report is an overview of the Lowy institute’s recent conference on the ways in which network relationships, structures, and technologies affect different parts of our world.
Heather Nancarrow, Stewart Lockie, Sanjay Sharma | Australian Institute of Criminology
25 July, 2009 | Perceptions about the mining industry and the rapid growth of mining communities in Australia has led to concerns that these communities are prone to higher rates of intimate partner violence than the general community.
Australian Institute of Criminology
27 July, 2009 | While offenders given suspended sentences were less likely to be reconvicted, the imposition of these, rather than non-custodial sentences, on first time offenders may have serious repercussions if they are subsequently reconvicted.
Richard Denniss | The Australia Institute
27 July, 2009 | While the Commonwealth will receive a windfall of more than $10 billion per year in revenue from auctioning pollution permits, state and local governments will transfer more than $2 billion a year to the Commonwealth Government.
Louise Collett | The Australia Institute
27 July, 2009 | Climate change will bring significant challenges to the island nations of the Pacific. This paper examines Australia’s attitudes to climate change in the region under the two most recent federal governments.
James Arvanitakis, Siobhan Marren | The Whitlam Institute
27 July, 2009 | Young people are changing the way they engage with politics and Politics is going to have to change as a consequence.
Social Policy and Research Team | Tasmanian Council of Social Service
24 July, 2009 | The voices of low income Tasmanians are reproduced in this report talking in their own words about the daily struggle to make ends meet on inadequate incomes and with limited access to health care and other services.
Centre for Social Impact
24 July, 2009 | This report is the first comprehensive research to assess the effect of the economic downturn on Australian charities and nonprofit organisations.
Australian Social Inclusion Board
28 July, 2009 | Developed by the Board to generate discussion and debate on the question of how to measure disadvantage and social exclusion, these indicators are first steps towards comprehensive performance measurement and evaluation of social inclusion in Australia.
National Health and Hospitals Reform Commission | National Health and Hospitals Reform Commission
27 July, 2009 | The Federal Government’s health review has called for a major shake-up of the national health system, with the Commonwealth taking over the funding of most services.
25 July, 2009 | The parlous state of music in public schools means not only are our children missing an important dimension in life, but they miss out on something that promotes brain function and social skills.
27 July, 2009 | If everyone is a producer, what role will video play in our lives in the future?
23 July, 2009 | This video documents the historical struggle of Indigenous radio in Sydney.
30 July, 2009 | This UK documentary showcases interviews with leaders from JISC, Oxford University and LSE as well as students and academics who discuss what the library of the future will look like.
The Australian National University 26 July, 2009 | The Faculty of Asian Studies, College of Asia and the Pacific, wishes to appoint an outstanding scholar to lead in the coordination and teaching of its undergraduate and graduate foundational Asian Studies courses.
University of Western Sydney 26 July, 2009 | MARCS Auditory Laboratories is undertaking a wide range of projects as part of a prestigious $3.4M ARC/NHMRC “Thinking Systems” grant to develop a ‘thinking head’. This is a breakthrough system that can learn from humans and will lead to advances in everything from hearing aids to mobile phones and video games. UWS is leading a consortium of Australian universities to develop the groundbreaking project including RMIT, Macquarie, Flinders and University of Canberra, with international input from the Technical University of Denmark,
University of Sydney, School of Media and Communications 26 July, 2009 |
An ARC funded scholarship is available for a full-time Masters candidate who is undertaking research in a topic pertaining to Chinese Film and Media Studies (with a special focus on posters of the Cultural Revolution and /or film representations of contemporary Chinese history/memory)
Australian Securities and Investments Commission 24 July, 2009 | The Credit team is building from the ground up.
NRMA Insurance 23 July, 2009 | A new position is now available for a strategic, Corporate Affairs professional to influence government policy in areas that impact on the business profitability, sustainability and reputation of NRMA Insurance.
01 March, 2010 |
| LOCATION: | The Glasshouse QUT, Creative Industries Precinct, Z2, Level 4, Musk Avenue, Kelvin Grove |
| ORGANISED BY: | CCI – ARC Centre of Excellence for Creative Industries and Innovation |
20 August, 2009 | Please join us for the joint launch of two new titles. five: fashion musing and Innovation: Management, Policy and Practice a special edition on Innovation in the Creative Industries.
| LOCATION: |
20 August, 2009 | You are warmly invited to the Official Launch of The Indigenous Policy and Dialogue Research Unit in conjunction with the So, what? public lecture with Professor Patrick Dodson
| LOCATION: | Melbourne Convention Centre |
| ORGANISED BY: | Centre for Design, RMIT University |
09 September, 2009 | Attendance in-person or online
| LOCATION: | Mooloolaba Campus of Sunshine Coast TAFE, 34 Lady Musgrave Drive, Mountain Creek Qld |
19 November, 2009 | The objective of the two day 2009 Learning Technologies conference is to challenge and extend your thinking about the ways educators can use learning technologies to challenge, inspire, motivate, and encourage learners.
30 July, 2009 | In this 100-page book, 42 artists, entrepreneurs, commentators, analysts, policy-makers, policy-sceptics, academics, financiers – and citizens – set out their hopes and fears for the future.
25 July, 2009 | Most children have little or no access to quality music teaching. And nothing is being done about it.
30 July, 2009 | This special issue of Innovation: Management, Practice and Policy will explore some empirical and analytic connections between creative industries and innovation policy. Seven papers are presented. The first four are empirical, providing analysis of large and/or detailed data sets on creative industries businesses and occupations to discern their contribution to innovation. The next three papers focus on comparative and historical policy analysis, connecting creative industries policy (broadly considered, including media, arts and cultural policy) and innovation policy.
30 July, 2009 | Visually beautiful, the book explores fashion theory, practice and pedagogy through five key themes – mind, heart,hand, eyes and body.
26 July, 2009 | This Privacy Victoria information sheet outlines the privacy rights of children under Victorian law.
27 July, 2009 | As internet video matures, we face a crossroads: will technology and public policy support a more participatory culture or will online video become a glorified TV-on-demand service?
SUBSCRIBE/UNSUBSCRIBE: Subscribe to APO emails at http://apo.org.au/user/register | To unsubscribe: http://apo.org.au/subscriptions/unsubscribe | Please feel free to share this email and any of its contents with anyone who might be interested.
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| social policy | organisation development | membership | training | ||||||||||||||||||||||||||||||||||||||||||||||||||||
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To view on a PC/Mac please use this link
http://www.abc.net.au/news/stories/2009/07/13/2624400.htm
To view on a mobile please use this link
http://m.abc.net.au/browse?page=11144&articleid=2624400&cat=Justin
from @perthtones’ iPhone
The two further workshops are as follows.
CAMHS Consumers and Carers on Monday 20/7/09 Citywest Lotteries House, 2 Delhi St West Perth. 10-12.00
CALD Consumers and Carers Tuesday 21/7/09 Same address. 13.00-15.00Register at mentalhealthsurvey@au.pwc.com or call 9238 3126.
Cheers
Ken Steele
and support these people please.
If anyone has input on providing some visuals, slideshow,etc…we’ll youtube it.

© 2009 Amy Kiel & Tony Serve This audio is free to copy and share as long as it’s not for commercial advantage.
It’s common sense that an ill parent will have an affect on the entire family, but all too often around the world, the children of people being treated are left out in several ways.
In the last 8 years I’ve recovered from PTSD ( Clinical Depression and Anxiety ) to the stage where my health is actually better than before I became ill.
The three main areas that have kept me alive and then allowed me to thrive again are based on Brain Plasticity, the ability to “rewire” your own brain. ( see the website for Norman Doidge’s inspiring book on the subject in the right sidebar of this blog )
Prescribed drugs may help some, but without proper diagnosis using fMRI it’s guesswork, and my Doctor guessed wrong – the SSRI’s made me suicidal.
The therapies/treatments that have allowed me to build new ways of thinking are neurofeedback, cognitive behaviour therapy and meditation/hypnotherapy.( see my guided imagery page – also in the right sidebar )
Since going public with my illness 8 years ago and on talkback radio here in Perth recently I have been swamped by people struggling with depression, panic and many other challenges. Almost without exception they have received little help and only grief from the “system” of health professionals who often just hand out potentially deadly pills, even giving SSRI’s to infants! Just last week a mate who was close to the end of his tether was told by his family doctor to “get over it” – I wonder if someone with a broken leg is told to “run away”
When I return to fill in at 6PR there are always calls from my fellow travellers battling the “black dog” and the common theme is that very few doctors, hospitals or health systems have any idea what to do in the short medium, or long term.
Anyway it’s become clear that the most reliable and effective help available comes through fellow sufferers or their devoted families and carers.
So let’s do something about that.
I am keen to work with anyone who has stories and info on recovery and resilience. I will post text audio and video here and you can make a big difference if you are able to pass on details of your journey and links to any useful sources of help or inspiration.
Clinical work on brain plasticity ( the ability to forge new neuronal pathways in the brain ) by amazing people all over the world has provided us with the means to share effective treatments for illnesses and genetic disorders such as;
depression, panic, anxiety, schizophrenia, epilepsy, autism, tourettes, closed head injury, head trauma, genetically related disability, stroke, paralysis, alzheimers, dementure, addiction, OCD, bipolar, bulemia, anorexia, fibromyalgia, body dysmorphia and more.
So please join in and contribute, especially if your story or info can help sufferers and reduce the deadly stigma that comes with brain related illness.
Please comment by clicking the button below, and you’re welcome to submit text pics, audio or video.
You’re welcome to send comments or materials by email to serve.tony@gmail.com
You can also call and leave your spoken thoughts or info on my recording service +61 8 9467 2264 – you have several minutes to speak and I’ll post the audio here for you.
Anyone can contribute, so don’t feel your input isn’t valuable because you’re ill or feel small inside, we need to hear from you and welcome questions or solutions equally.
I hope to hear from you soon… and you’re welcome to join me on my last 4 nights at 6PR midnight to dawn – that’s 882 6PR in Perth, globally at 6pr.com.au
local time is daylight saving and it’s midnight to 0600 sat & sun, then midnight til 0500 mon & tue.
Perth time is GMT/UTC PLUS 9 hours
Early Sunday morning I’ll have 2 teenage guests in the studio who have worked out effective ways to overcome eating disorders and depression. Join me, Travis and Alicia and about 30 thousand listeners and see if we can make a difference.
The One Laptop Per Child group has produced a new ad ( click here to view it on Youtube ) featuring a remixed voice and video package that at least gives the feeling that the Beatle was supporting it.
It’s not exactly slick, but if it continues to focus on the needs of children it’s okay with me too Yoko.
By the way, here in Australia John Lennon’s “Double Fantasy” Album was number one on this day back in 1980, the year I started as a radio journalist.
Click here for the website of One Laptop, and see the mission statement below.
To create educational opportunities for the world’s poorest children by providing each child with a rugged, low-cost, low-power, connected laptop with content and software designed for collaborative, joyful, self-empowered learning. When children have access to this type of tool they get engaged in their own education. They learn, share, create, and collaborate. They become connected to each other, to the world and to a brighter future.
We all know that the biggest challenges for children in our world are war, disease, famine, drought and neglect.
We desperately need energy money and resources there, but this campaign looks worthwhile for some fairly obvious reasons.
Please let me know if you support or see other advocacy and advocate stuff that might be worth republishing here.
I’m particularly keen to hear from people who are working in area of mental health with stories or help finding useful treatments based on brain plasticity.
Everything from meditation to; neurofeedback, analysis, CBT and guided imagery works on “rewiring” the neuron circuits of the brain after damage, disease or deterioration.
Exciting and hopeful clinical work being done in many areas, such as stroke and HI recovery and many ”disabilities” are turning out to be treatable conditions.
It’s been exciting to see mainstream media at least begin to pick up on the great work being done, and the ongoing success of Norman Doidge’s book ( and PBS special ) has been an important starting point or focus for those unaware of the new treatments that continue to evolve.
That ”brain training” software and games we see being advertised are just a small part of the real and repeatable effects of “rewiring” the brain. They are becoming more and more widely used as theraputic devices in private homes, business, hospitals and nursing homes.
The possibilities, even in the short term, for better treatment and some cures are inspiring, but there will soon be debate about some key elements of life and law.
It’s become clear that all crime and substance abuse are related to mental health.
It is self evident that no-one in their right mind kills, rapes, tortures or neglects. No-one in their right mind uses substances that make them ill, violent, impulsive or an addict.
It stands to reason that Governments as providors of health care could ( and I say should) be held accountable for not
providing mental health care when someone comes to grief.
Maybe that will be a good thing in the this risk averse corporate world.
Perhaps if lawyers and activisits around the world began a concerted series of claims for individuals and groups based on their known mental health issues not being addressed we may see less seriosuly ill people released from jail or hospitals and into a new tragedy.
Once again it comes down to whether we care enough about our safety, health and the future to spend money and energy on better diagnosis and treatment for brain related illnesses.
We have the knowledge, but the will is yet to come and there are also the hurdles of stigma and cost. Change will come though, we’re evolving.
Anyhow, I’m just a madman with a will to make a difference, it’s what YOU think and do that will make a difference.
Midnight to dawn radio lsteners in Perth ( 882 am )and those listening online around the world ( at 6pr.com.au ) might find these links useful over the next 3 weeks as I fill in at the Farifax radio station.
I’ll add to the links and welcome your input – simply click on the comments link after the tags at the bottom of a story. I have yet to set up email in the studio but you can text me your number anywhere in the world and I’ll call back, SMS/text your name , country,area and phone number to +61 403 339 290
Hours related to this material are midnight to 0530 local time, 1500GMT/UTC to 2030 GMT/UTC weeknights from Dec 22 to Jan 11.
The call in number is +61 8 922 11 882 and in a pale imitation of the great NPR network ” all things are considered,” so join in and talk about anything at all, because as long as we’re respectful we can tackle anything.
Special shout outs to Paul in Alicante Spain, Gina in Phoenix, Byron in Oregon, my friends in Israel and Palestine and anyone who’s been listening but has yet to make a call.
Listen in in over the next night or two for a chat with Robin Chapple from FARA a global network of people concerned about the destruction of ancient rock art that preadtes the Pyramids – click here for info on the shameful neglect and corporate vandalism of the Spirit Rocks on West Australia’s Burrup Peninsula.
Meet a little girl whose illness meant half her brain had to be removed.
INFO on the book that has amazed, informed and inspired me more than any other in decades * This link will take you to info on the book ” The BRAIN That CHANGES ITSELF “
Watch here as Alvaro Fernandez describes some new brain science that promises breakthroughs in treating a range of illnesses and injuries that had ’til now thought to have been something we just had to live with or die from.
Disability sucks,but some politicians and bureaucrats suck even more.
The denial of a woman’s right to stay here in Perth is based on open and official discrimination and cannot stand.
That she is a much needed professional and that her child will not be the only down syndrome child in the state are actually beside the point.
The Point for the Immigration Minister is that the point is now media and community pressure – so PLEASE register your complaint at his website’s contact email http://labor.com.au/people/email/evans_chris.php – and pass this on to your friends and colleagues at home and abroad to do the same.
I’m sure he’s a nice man and has nice people working for hium, but what’s being done is NOT nice.
Thanks to award winning journalist from the Sunday Times and PerthNow Paul LAMPATHAKIS for the story
http://www.news.com.au/perthnow/story/0,21598,24622247-2761,00.html ( also pasted below )
( congratulations to the Sunday Times team for last night’s journalism awards, Colleen EGAN and Joe SPAGNOLO joined Paul in being recognised for outstanding work that has seen them subject to incredible pressure from the powers that be - though I can’t remember any of them ever complaining about the cost to them and their families )
Click the audio below for my interview with Journalists spokesman David COHEN earlier this year on the unprecedented police raid that followed one of Paul LAMPATHAKIS’ other stories.
Paul Lampathakis
November 08, 2008 06:00pm
EXCLUSIVE: A HIGHLY regarded British midwife working in WA is being forced out of Australia because her Down syndrome child is considered a financial burden.
The woman, who works at Joondalup Hospital and is described by fellow staff as “one of the hospital’s best” , has waged a legal battle with the Federal Government since 2002.Her application for permanent residency was rejected that year because the Government viewed her child as needing health or community services that would result in a “significant cost to the Australian community”.
After unsuccessful appeals and court hearings, the family has applied to Immigration Minister Chris Evans to intervene.
But a spokesman for Senator Evans could not say if this would happen - even though The Sunday Times understands the mother has only weeks left.The woman did not wish to be named or interviewed, fearing retribution by the Government.
But one outraged supporter said: “This country recruited her to come here and work due to an acute shortage of midwives. She is one of the best nurses in the unit, she has contributed widely to the hospital and the general public.
“(She has) wasted thousands of dollars on court cases to try to overturn the Government’s stupidity.”
Family support group Down Syndrome WA labelled the Government’s stance “discriminatory and disgraceful”, calling on Senator Evans to grant the family residency.
Group spokeswoman Jan Gothard said the Immigration Department should examine cases individually, rather than just assume those with Down syndrome would be a burden, when many led independent lives.
Dr Gothard said the WA case and another recently - where German doctor Bernhard Moeller was to leave the Victorian town of Horsham after the department classified his 13-year-old Down syndrome son a burden on taxpayers - were the “tip of the iceberg”.
As well as those already in Australia, many potential skilled migrants were also being denied entry for the same reason.
“Nobody, whether they’ve got Down syndrome or not, can guarantee they’re not going to be a cost to the system,” Dr Gothard said.
“Nobody can guarantee they’re not going to get lung cancer, or liver disease, or need a heart transplant.
“Is there not a potential cost for somebody who smokes all their life? Is there not a potential cost for someone who’s overweight?”
She said the Disability Discrimination Act protected people with disabilities living in Australia, but not during migration.
Opposition health spokesman Peter Dutton called on the Rudd Government to show “compassion” and allow the WA family to have permanent residency.
“In this country we’re desperate for good health professionals,” he said. “It would be a tragedy to lose the skill and expertise that this person has brought to the local community.”
Click the audio link below for a report and interviews from West Australian advocate Zeliha Iscel from EDAC.org.au
zeliha-iscel-on-ethnic-ability
more audio from a remarkable 2 years of broadcasting and advocacy
http://www.edac.org.au/radio6eba.html
Zel is now also working with Australia’s national Ethnic Disability group – more on that and a new dedicated blog to follow.
” I am only one, but still I am one. I cannot do everything, but still I can do something; and because I cannot do everything, I will not refuse to do something that I can do. ” Helen Keller
ScienceDaily (2008-11-06) — People who have suffered traumatic brain injuries and who are unable to speak or move are being given the first chance to communicate using just the power of thought — and a laptop loaded with sophisticated algorithms.
http://www.sciencedaily.com/releases/2008/11/081105191855.htm#
Please share this with any and all advocacy groups and philanthropists you know, a little money for this project would go a long way to giving some dear people a better chance at fulfilling their potential.
By the way, local clinical work/research here in Perth by Dr Neil Beck suggests Neurofeedback techniques can play a major role in recovery for people with head injuries.
It works with the brain’s natural “plasticity” to develop new neural pathways.
I’ve also found Neurofeedback helpful for PTSD and Panic – a lot more efficacious than those damned SSRI’s
btw… I’ve often been called a “bleeding heart” – well, if a heart’s not bleeding, it’s dead, and that’s OFFAL!!!
abc.net.au carried this story that will give some hope for people with disabilities who long to be represented by a peer ( not a peer of the realm! )
For more info on advocacy for disabled people please visit www.edac.org.au and listen to some great interviews by Zel ISCEL in the “radio archives” section
The story from ABC is below
Australian professor appointed to UN disabilities committee
Posted 1 hour 2 minutes ago
Map: Sydney 2000
The former Dean of Law at the University of Sydney has been appointed to the United Nations Committee for the Convention on the Rights of Persons with Disabilities.
Professor Ron McCallum, who is totally blind, says he is humbled to be one of 12 independent experts appointed to the committee, which will consider the progress of countries meeting their obligations in areas including non-discrimination, transport and communications technology.
He says the convention will play a pivotal role in focusing the United Nations on the plight of disabled people.
The Federal Government says Professor McCallum’s election is a major achievement which has come at the first meeting of countries to ratify the Convention.
You don’t have to be a geek to be inspired by new science.
Recently Australia’s ABC screened “Kevin Bacon Cures Cancer” – an inspiring look at how the urban myth of 6 degrees of separation has evolved into the exciting new field of “Network” science.
The math and human aspects of the story/science are intriguing and promise much for the future, especially in curing diseases like cancer and protecting or enhancing other networks such as the web, power grids and there’s even an application for the US as it tries to penetrate or destroy terrorist organisations.
Don’t worry if you missed the telecast – here’s the link
http://www.abc.net.au/tv/documentaries/interactive/futuremakers/ep4/
Speaking of networks, I’m calling for collaberators on a series of projects to produce resources for community and other NGO groups such as radio and TV Public Service announcements to reduce the stigma of mental illness and raise awareness for a range of humans whose voices are often ignored.
I’m also keen to publish audio & video on a range of medical and mental health conditions especially for people outside big urban areas who often miss out on support and self help programmes in the big city.
Perth people can access excellent help from the NGO connectgroups ( for whom I conduct free media and web workshops ) and they need help developing resources for people outside the urban hub.
visit connectgroups at; http://www.connectgroups.org.au/
I’m also working with Zel ISCEL and the team at the Ethnic Disability Advocacy Centre ( EDAC ) on some valuable education programmes and her excellent radio programme ” Ethnic Ability. ”
visit http://www.edac.org.au/ and click on the “radio” button for archived programmes.
Finally for now – anyone who works with recording speech may be delighted with a a free programme called “Levelator” which really makes a huge difference to the quality of recorded interviews and monologues.
visit http://www.conversationsnetwork.org/levelator
and for iPhone geeks like me – you can now record broadcast quality aiff files and transfer to your Mac or PC with the iPhone app and syncing app available free at
http://www.griffintechnology.com/products/italk